- Location
- Birmingham, AL
Well I was diagnosed with cancer back in Septemeber. I have/had T-cell lymphoblastic lymphoma (lymph node swollen up to grapefruit size in my chest) and luckily after my 2nd of 6 rounds of chemo (hyper-CVAD, yeah google it, lol) I was and am in remission. It sucks being young with cancer, but if I wasn't young and strong I could have never had the chemo I had or fight back like I do so it can be a blessing. So I have been really high spirited about all this and never really thought about relapsing or dieing, etc. Unfortunatly my doctor didn't let me or my folks in on what all is scheduled to be done to me...just gave us a little info at a time and not the big picture. I was told if I take good to the chemo I'll only have chemo because the type I had is so strong.
So the problem is after I am done with chemo I think I am ready to turn the page in this chapter of my life and get back to a normal life and finally take a breath of fresh air from all this. Well no, I meet with my doc (right before I finish chemo) and he mentions radiation, 5 days a week for a month. I didn't fight it too much, but I still am concerened about it because its gonna be real real close to my heart. So a month passes by and I get a bunch of scans done and they are thank God all clear. I meet with my doc again (after my last round of chemo) and now he mentions a BMT (bone marrow transplant). I'm in complete shock as I am in remission and my marrow and spinal fluids have always been clear, in fact I had 11 (yes eleven) spinal taps with chemo injected into my spine to make sure it stayed clear throughout this whole time. I would be getting an auto BMT, which is taking my own clean bone marrow out and then hitting me with chemo 100x stronger than before for 5 days then giving me back my clean marrow so I won't die (so blood cells can grow back) and its considered the "super cleanser" to the cancer, I guess the big last hit or something.
SO I am faced with making the choice of having this BMT done, which is 50/50 among doctors, some are for it some say its a waste.... of course my doc is for it. I am going to get a second opinion (probably flying to MD Anderson or New York) after meeting with the transplant team on the 28th. Plus to top it all off I am now uncertain about even my radiation as I have read alot online and heard some bad side affects can happen to your heart long-term, which sucks. No point in doing it if I will die of a heart attack at 40.
Anyways here is a post on the cancer boards for a more "in depth" idea of whats going on:
http://ubb-lls.leukemia-lymphoma.org/ubb/Forum16/HTML/001090.html
I just need prayers and hopefully God will put the right answers in my hands and I'll make the right choices. Also pray that I am able to keep my head up during all this, I forget sometimes no matter how bad it all was and will be I am "cancer free" today and this is all to keep me that way.
So the problem is after I am done with chemo I think I am ready to turn the page in this chapter of my life and get back to a normal life and finally take a breath of fresh air from all this. Well no, I meet with my doc (right before I finish chemo) and he mentions radiation, 5 days a week for a month. I didn't fight it too much, but I still am concerened about it because its gonna be real real close to my heart. So a month passes by and I get a bunch of scans done and they are thank God all clear. I meet with my doc again (after my last round of chemo) and now he mentions a BMT (bone marrow transplant). I'm in complete shock as I am in remission and my marrow and spinal fluids have always been clear, in fact I had 11 (yes eleven) spinal taps with chemo injected into my spine to make sure it stayed clear throughout this whole time. I would be getting an auto BMT, which is taking my own clean bone marrow out and then hitting me with chemo 100x stronger than before for 5 days then giving me back my clean marrow so I won't die (so blood cells can grow back) and its considered the "super cleanser" to the cancer, I guess the big last hit or something.
SO I am faced with making the choice of having this BMT done, which is 50/50 among doctors, some are for it some say its a waste.... of course my doc is for it. I am going to get a second opinion (probably flying to MD Anderson or New York) after meeting with the transplant team on the 28th. Plus to top it all off I am now uncertain about even my radiation as I have read alot online and heard some bad side affects can happen to your heart long-term, which sucks. No point in doing it if I will die of a heart attack at 40.
Anyways here is a post on the cancer boards for a more "in depth" idea of whats going on:
http://ubb-lls.leukemia-lymphoma.org/ubb/Forum16/HTML/001090.html
I just need prayers and hopefully God will put the right answers in my hands and I'll make the right choices. Also pray that I am able to keep my head up during all this, I forget sometimes no matter how bad it all was and will be I am "cancer free" today and this is all to keep me that way.